Who is Ehlers-Danlos named after?
Who is Ehlers-Danlos named after?
The syndrome is named after Edvard Ehlers, a Danish dermatologist, (1863–1937) and Henri-Alexandre Danlos, a French dermatologist (1844–1912) (2). In 1936, an English physician, Frederick Parkes-Weber, suggested that the disorder be named ‘Ehlers-Danlos syndrome’ (3).
What famous people have Ehlers-Danlos Syndrome?
12 Public Figures Who Live With Ehlers-Danlos Syndrome
- Jameela Jamil. Jameela Jamil Headshot Good Place.
- Yvie Oddly. Yvie Oddly Close Makeup.
- Lena Dunham. Lena Dunham Dress With Stripes.
- Allysa Seely. Allysa Seely Team USA.
- Cherylee Houston.
- Madeline Dyer.
- Russell Kane.
- Mikaila Delgado.
When was Ehlers-Danlos first discovered?
It is one of the oldest known causes of bruising and bleeding and was first described by Hipprocrates in 400 BC. Edvard Ehlers, in 1901, recognized the condition as a distinct entity. In 1908, Henri-Alexandre Danlos suggested that skin extensibility and fragility were the cardinal features of the syndrome.
What is the life expectancy of someone with hypermobile Ehlers-Danlos Syndrome?
People affected by vascular EDS have a median life expectancy of 48 years and many will have a major event by age 40. The lifespan of people with the kyphoscoliosis form is also decreased, largely due to the vascular involvement and the potential for restrictive lung disease.
At what age is Ehlers-Danlos syndrome diagnosed?
The age at first diagnosis peaked in the age group 5–9 years for men and 15–19 years for women (see figure 2). There was a significant difference of 8.5 years in the mean age of diagnosis between men and women (95% CI: 7.70 to 9.22): 9.6 years in EDS (95% CI: 6.85 to 12.31) and 8.3 years in JHS (95% CI: 7.58 to 9.11).
Is Ehlers-Danlos a disability?
Just having a diagnosis of Ehlers-Danlos is not enough to obtain an award of disability benefits. Your attorney must work with your doctor to document not only the medical details of your Ehlers-Danlos, but also the functional impairments that it causes.
Does hypermobile EDS get worse with age?
The most common types of EDS (classical, classical-like, and hypermobile) do not greatly affect life expectancy. However, symptoms may become more severe as patients age and joints that have been dislocated multiple times become painful. Everyone’s bones become weaker with age.
Can you live a full life with EDS?
EDS cannot be ‘cured’ but many people learn over time how to control it and live full and active lives. The day-to-day management of most types of EDS is based around the right kind of exercise, physiotherapy and pacing. In addition you should seek referrals for any associated conditions you may have.
